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My eye! Sweet Jesus, Ouch!


Sledge

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Cheers, buddy.

 

It's quite tedious, not to mention more than a little stressful as I have to keep going back and forwards to and from the hospital at visiting times.

 

Two 2-hour slots, two hours apart. I live about 20 minutes away, so a 40-50 minute round trip gives me about an hour at home in between, not really long enough to do anything worthwhile but too long to hang around the hospital for...

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Well, not really as she's in a bay with 3 other women. When she's in a side room I can stretch it a bit as there's no one to see.

 

Most of the staff are okay but sometimes you get little Hitlers who are strict on the rules. If they cause a fuss they can stop you from getting in at all - the doors are locked and you have to ring to get in due to "security".

 

A few wards are moving to "open visiting" where you can just come and go whenever - wave of the future - but I'd like to see at least 10-10. It's reasonable for the other patients not to be disturbed by visitors during the night, and before 10 in the morning is the busiest time getting everyone breakfast and morning meds and the Drs do their rounds about 9 as well...

 

Mostly, though, bad staff don't like visitors because they witness the poor treatment and speak up, hence they're resistant to longer visiting hours.

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Vote Stunt into power so he can fix the NHS?

 

Get me tomorrow's winning lottery numbers so we can go private and get seen at the special clinic in London with the 5+ year NHS waiting list you need a letter from God to even get on but you can be seen tomorrow if you've got ten grand to pay for the half hour consultation....

 

Seriously though, not really, mate, but thanks.

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Visiting hours are and I really want it to be possible to be visited before 10 just so people actually witness the absolutely shocking treatment that can happen.

 

My last time in hospital I got *fruitcage*ed round over night coz the *rickroller* duty junior lowest of the low house officer wouldn't write for my normal meds rubber stamping them because I take my oxy doses split into two times because 'but but but 12 hour drug cycles!' That had been prescribed fine for the past three years

 

They didn't give my my night meds till 3am and even then they underdosed me by 2/3 my normal doses so I don't sleep till 4ish. Then at 640 I was physically SHAKEN awake by one of the 'care assistants' or whatever the title is asking me about what I wanted for breakfast.

 

I don't mean a nudge light hand on the shoulder type thing I mean actually grabbed to the point he left a mark on my shoulder and ragged around till I opened by eyes sat up and answered the guy.

 

Over the 5 days I was in morning medication wasnt given till about oh.... 9.am each morning at the earliest and the record was 1130 (morning meds came round at 11 but I had to wait coz they didn't want to interrupt ward rounds) so I'd lay there in massive pain for hours and get told 'someone will bring it round soon'

 

I had all my Med times forcibly changed because 'policy' and 'the system won't let me do x'

 

On the day I was released it took them 6 hours later than I was promised was told after ward rounds at 11 meaning I could you know go see the boy in London get a cuddle and maybe..... You know

 

But it took them 6 hours to get me seen for the rubber stamp yeah fine *fruitcage* off home things and only THEN did I find out that the brain dead *Ubar* house officer hadn't signed the script for my time in hospital morning the pharmacy didn't dispense any of the drugs for my time in hosp

 

So where did they get the drugs may you ask.... Hmm from MY HOME SUPPLY is brought in for being released so I could spend the day/ night I was released in a hotel with my boyfriend before I went back home. But no... They used the 2 days I had for the trip back and my emergency day set only managing to do so by under dosing me

Massively on said *rickroller*'s orders.

 

And when I kicked off about that they were like 'oh it's ok you have meds at home' not grasping that home was a 6 hour coach ride plus wait time away and they'd RUINED my plans for post hospital (thankfully I'd bought n open ticket so I could just go home feeling sick and horrible) and once I pointed out I was 6-9 hours from home I got lectured and pressured and talked down to like IM *fruitcage* six about 'oh it would be better for you if we booked you a hospital transport'

 

I then had to wait annother four hours while they wrote and sorted replacements for the meds they used without consent and I only got that when I pointed out that they'd committed a criminal offence by dispensing medication without a valid prescription and I'd be putting a complaint in when I left the ward.

 

Throughout it all I was belittled, talked down too, insulted and treated like an object not a person and I would argue had my health put at risk.

 

Simple things like going out for a cigarette or getting a drink... You were made to ask permission and generally treated like *suitcase* for inconveniencing them by buzzing to ask. From day two I just went out for a smoke well Vape since I Can't use it in hosp property. Just rolled out and told them I was going 'out' when they asked where.

 

It's an incredibly dehumanising experience for someone whose young and independent and watching how staff talk to vulnerable people is appalling.

 

The NHS needs a serious enema, Iv seen mental things, disgusting things like people waiting 3 hours + past the written dosage times for prescribed ordered pain relief to be dispensed and that's not 3 hours from scrip being written on an A&E admittance (though Iv seen that) bz that could be understandable depending how busy things get in A&E 5m to get a morphine drip setup could be hard to grab it sucks but... No this was a medication schedule laid out as Morning meds are xyz given at 07.00 because patients are woken for breakfast at 7 coz ward rounds are at 9am. 5 minutes for them to do the drug trolley for the bay of 4 patients their assigned (I know it's 5m because as a premed student Iv assisted a nursing team with doing the drug trolley on morning meds, including sign off for CD's your looking 15m for the whole ward maybe 25 with large numbers of observe patient taking tablet type orders)

 

Junior doctors barely out of training refusing to allow a patients routine medication regimen developed by hersenior consultants 'on their ward' because 'I'm not comfortable writing for that even though it's documented as a current long term scrip, your scrip slip matches what's in your notes and it's medically safe' because lord knows 3 years of being seen by a specialist pain team and neurology team who tweaked and approved my meds while I wait for surgical testing is less medically sound theory and planning than a junior house officers 'feelings'

 

Nurses doing things out of spite to punish patients for being 'hard work' or for being awkward cases. The *badgeress* who pulled my boy's cath out after his last operation is definitely on that list. He's requested it be taken out at that mornings ward rounds and asked a couple of times through the day when the nurses came round to do tablets or temp checks about if they'd got an approval and when the approval came through the *badgeress* yanked it out like she was trying to start an outboard motor all the while with this smug grin on her face.

 

There's some amazing people in the system unfortunately there's also some complete *Ubarflock*.

 

I'm sorry she's not well hedge, if there's anything you need msg me ok? And I know Exactly what you mean about the NHS getting its act together and finding the solution.

 

It's *suitcase* how there are two or three clinics that could really change your life but actually getting the NHS approval is pretty much impossible without having contacts within the system to actually get anywhere you need someone with enough pull to make a phonecall or lean on the right person in a conversation in a staff lunch room and then you may get the help you need.

 

I'm in the position where their finally going to refer me to the big clinic with the multi year waiting list as they've finally given up on pissing me around bouncing me from pillar to post till I get tired and go away but I need to hope that they'll consider me an urgent case or... Il lose annother three years waiting and it will be age 30 before I'm seen.

 

If I had even half the time that waiting for the hospital has cost me if I could have had that time at minimum wage... I'd probably have paid for half of my degree

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But formal complaints just get lost or buried and you get a pretty letter which promises the moon and does *fruitcage* all.

 

Stunt? When you rule Britain can we add physical punishment of senior hospital management as a penalty for a certain level of complaints and issues in units under their control? And make them be seen for the injuries from the beatings in their own hospital

 

Same for ward management! if a staff member under their control gets a certain number of complaints because they're one of either the *suitcase* at their job staff that are hurting people out of ignorance or the *suitcase* at their job and malicious with it types*. Both the staff member who has received the complaints gets wall to wall counselled, then the manager of that staff member gets the same sort of wall to wall counselling because if they've had x amounts of complaints about that staff member and their management style hasn't changed things then they need to be called to the carpet as well.

 

We as a country have tired the pride in self and team approach to improving the NHS, we have tried the rewarding positive individuals approach and tried the treat it like the private sector and reward departments approach *fruitcage* it lets try the armed forces approach.

 

oh this One person is a *Ubar*, so to fix the *Ubar* , rather than simply punishing the *Ubar*, the rest of his team and his direct commander will be beasted and/or beaten severely, they then have an incentive to fix said *Ubar* so they don't get annother beasting/beating.

 

Can you tell I really hate the system as it is now, look at hedge's responses to me when I talk about my stuff going on with my health. No matter how *fruitcage*ed up the stories are no matter how bad it is he is never suprised, he sees stories like the ones Iv just told to be normal situations. The NHS is broken, there's something truly wrong with it and unfortunately it's mainly those who deal with it repeatedly that see it

 

I get told I'm talking rubbish by people or that I must be not telling the whole story when I talk about how Iv been treated in hospitals/by the NHS. People don't seem to want to hear about what goes on in the system.

I do heap praise on the good staff it's just... It's hard to deal with the good staff who do an amazing job because it makes dealing with the normal couldn't give a *suitcase* bridge that much harder because you've met that one person who does care.

 

Also um Tiiiiink! There's a rude word that the filter doesn't notice um Iv edited my post but....

 

 

 

* those who *fruitcage* things up to 'get even' with patients because of who they are who their doc is or just coz they have the power to *fruitcage* someone's day up

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Kindles and did players are the best inventions for those of us with long term hospital stuff.

 

Hedge, you're a genuinely lovely person and I know that she appreciated everything you do. Just be yourself and I know it's hard but please when it gets tiring stressful with the back and forth home to hospital etc. Please try and keep that out of your mind when with her.

 

This is probably teaching my nan to suck eggs territory but it may be useful for everyone else, seeing something of the effect being Really ill can can have on one of the people in a relationship.

 

it's something that really eats away at me, makes me feel really genuinely awful about myself when I see the boy's exhausted from looking after me, when he's run himself ragged or when he's stressed with visiting stuff. I just... It eats away at me and makes me feel like I'm the worst person in the world, the crappest girlfriend, the most useless thing ever because... I just see the part of me that's a burden first and it gets harder to believe him when he says I help, when he talks about the support he gets from me. When I get really ill I just... I feel like Iv got nothing to offer him.

 

I don't know how she reacts when

In hospital and stuff or how she views herself but if she's anything like me something that will make a HUGE difference to her mental space is how you are with her intimacy wise when she's in hospital.

 

I know it's awkward but do what you can depending on privacy. Hold her hand, cuddle her and *blushes and squirms allot* show her that she's someone you find.... Like... The hospital stuff doesn't change how you um... You know.

 

Knowing that my boy still wants me when I feel so bad, when in laid in the hospital bed too weak to sit-up without the bed's motor pushing me upwards, when I'm so shaky and Ill I'm struggling to talk and stay awake, when Iv got a canula in my right hand, a feeding tube through my nose or an oxygen mask on and I'm sweating and shaky, have to have him hold the sick bowl for me coz I'm too weak to vomit and hold it at the same time just makes me feel a mess.

 

When he comes to visit and kisses my neck just like he does when he comes to see me at home. Does the same nip of my earlobe that makes me squeak, when he runs his nail over my palm in the same way that makes me smile when he does it at home as we hold hands in the cinema or when I'm laid on the bed and he's sat next to me, we're talking and he has his hand on my thigh drawing patterns with his nail just like he does when we're in bed together an when he goes to leave and teases me with his nails or the heel of his palm really helps.

 

Coz by touching and talking just like at home he shows me he still wants me the partner the lover that he doesn't view me as the sick person he has to care for first, he's still looking at me as well *blushes*.

 

Dunno if any of that makes sense or anything hedge it's just what I feel in terms of insecurities and worries that I'm not.. That I'm too much of a mess for him to be interested in that me being sick will change things all stupid panicky insecurities but he knows they exist and tries to reassure me. Plus it distracts me from feeling ill and tired and useless and he likes malign me blush.

 

 

In terms of food and stuff it's drinks I miss more than anything else, your options are usually either tea (cheap teabags plastic cup so it doesn't taste right) *suitcase* coffee or really weak orange squash and I find myself really craving things like coke and relentless just to break the monotony. The London hospitals aren't too bad because theirs a costa somewhere but it's always so ludicrously expensive.

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If she likes coffee, Hedge, then cold brew is both easy, super tasty, and lasts quite a long time for 'fresh' coffee. A cold thermos would easily last 3 or 4 days (depending on how much you drink. It'd maybe last me a day and a half... coffee coffee coffee.)

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I did go back and edit it once I realised that the swear word I was using wasn't filtered Tink, whoopsie.

 

And ranting is easy now I have voice to text I can pace and rant at my computer and I get it typed out nice and neat which is helpful although getting used to speaking punctuation takes a while to get your head round. It's like reading telegrams.

 

As for cold brew coffee is it actually worth it? Never been sure about it, doesn't it give a very different taste coz of how the absorbs ion of flavour happens in hot vs cold

 

Also protip don't comment o. YouTube Airsoft reviews your inbox will get full of STOOOPID

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Cold brew is amazing.

 

I make it at work now that I have a fridge at my job.

 

 

EDIT: Actually, I've had a pretty rough experience with the NHS. Not as bad as yours by a long shot, but still.

 

I had a bike accident and snapped my arm at the humoral head, leaving ~5mm of bone holing the thing on. Ambulance crew were on point and called through to make sure I was going to get pain relief when I got to hospital as the entinox had to stay on the ambulance, but when I got there I was given one paracetamol and told that would be sufficient.

 

Seriously. I damn near snapped off my arm and you give me half of what I take for a hangover.

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I don't need to spend stupid money on gadgets to do it right?

Hell no. I use a Mason jar for brewing it in, and a swing top glass bottle and a funnel with a filter paper to filter it.

 

Easy as pie.

 

(Eating the pie, not baking it)

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Coldbrew? Have you got any way of filtering brewed coffee? A French press, pour over, percolator with filters...

 

If yes to any of these, you can make coldbrew.

 

Best ratio is about 8:1 water: coffee. So 800ml water to 200g coffee.

 

I like I strong so get a 227g bag of ground coffee (whatever you fancy, Taylor's of Harrogate lazy Sunday is nice, but anything half decent - avoid the Costa and Starbucks ones but cafe direct, taylors, percol or the like and you'll be golden.

 

Anyway.

 

Bag of coffee.

 

Litre ish of water.

 

Mix, leave for 24 hours, strain, decant, enjoy.

 

WATER IT THE *fruitcage* DOWN. Its massively caffeinated compared to 'normal' coffee. I usually go about half and half with water and then milk to taste.

 

Its super simple stuff.

 

You're right, the flavour is different but its surprisingly un-bitter because its not been made with hot water.

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Wifey isn't allowed coffee any more after some idiot consultant two years ago decided that she didn't need antibiotics as she didn't really have an infection.

 

12 hours later she's in septic shock, atrial fibulation and SVT, heart rate peaked at 224, crash team were there and everything. Just at visiting time do I blithely walk into a scene out of Emergency Ward 10 before getting shooed out by a nice lady doctor and sent off to sit upstairs. Nice...

 

I was told later that she was 5 seconds away from a cardiac arrest, had no measurable blood pressure and was *conscious* throughout - that's the only reason she survived was the sheer stubborn refusal to let go of the last glimmer of awareness.

 

They gave her a drug which chemically stops your heart then restarts it. People don't normally talk while that's happening, but nothing can shut Wifey up...

 

Needless to say, all the notes from that week "mysteriously" went "missing" and were "found" about a month later, very obviously with pages removed and rewritten with a lovely work of fiction. Nurses who swore up and down they'd testify suddenly "forgot" all about it...

 

Saw the same doctor about six months later when she was in again... Gave him five seconds to get out of the room, and only that because getting banned from the hospital and arrested wouldn't have helped anyone.

 

If she'd died, I wonder if they'd have been able to cover it up as easily...

 

 

Thanks for the advice, Paranoid, I appreciate it may not have been easy to write all that down for everyone to see.

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I really am sorry for all your terrible NHS experiences guys.

 

I've heard of bad things but personally have had nothing but great experiences with helpful staff looking after me in a timely fashion.

 

The paracetamol thing is called the analgesia ladder, they have to start with a single paracetamol and work up in stages because for some people it genuinely works and over doing pain meds can be very dangerous.

The army don't *fruitcage* about with that nonsense and just rammed me full of so much morphine I don't actually remember anything that happened but they do their own thing.

 

Management is the problem in healthcare, there is too much of it.

You need some but managers would be lower on the pecking order that the medical staff.  They are there to run the spreadsheet that does the rota and make sure the hospital doesn't run out of blankets and *suitcase* tickets.

 

Making someone a manager because they are a good doctor is idiotic.

Let them keep being a doctor.

 

As for bad/malicious staff, they get the same treatment as any other garbage human in Stunt's Britain.

Brutal punishment followed by retraining/re-homing/another chance.

 

Cold brew coffee will stay cold longer than hot coffee will stay hot because of entropy.  The entire universe will eventually die a heat death when all the matter is infinitely distributed at absolute zero and your cold coffee is closer to that than hot coffee.

 

It is still coffee though.

 

Hed and Droid and anyone else for that matter, if you are reading this I will do anything I can do to help whatever situation you are in.

All you have to do is ask, publicly or privately and I will do it or explain why I can't.

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Unless you've got access to a private hospital full of awesome staff, there's not much that can really help - but it's nice to vent a bit and stuff, so that's good.

 

Other than that, I've been shooting the *suitcase* out of people in WW1 tanks and biplanes on the BF1 beta, so that's good for stress. :)

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